Wednesday, 26th October
2 satellite events in parallel
16.30 - 17.30 REGISTRATION
Welcome and Official Opening
- Presentation of CASyM (Coordinating Action Systems Medicine) major outcomes and EASyM vision, strategy and agenda
by Dr. Charles Auffray, PhD, European Institute for Systems Biology and Medicine, Lyon, France
- Introduction to the scientific content of the conference
by Prof. Dr. Timothy R.D.J. Radstake, MD, PhD, Utrecht Medical Center, The Netherlands
Prof. Arnd Hoeveler
Head of Unit – Advanced health research
Directorate-General for Research and Innovation
Arnd Hoeveler received his PhD from the Institute of Genetics at the University of Cologne.
In 1991 he was awarded a full Professorship in Biochemistry and Molecular Biology in France. He served several positions in France before joining the Directorate-General for Research and Innovation at the European Commission in 1996.
Between 2001 and 2006 he served as Head of Unit, covering Infectious Diseases, and led several European programmes dealing with HIV/AIDS, Malaria and Tuberculosis.
Since 2007 he was Head of Unit of the European Commission's Health Biotechnology programme and is now in charge of the unit 'Innovative tools, technologies and concepts in health research' dealing with Regenerative Medicine, Advanced Tools and Technologies, Systems Medicine, Predictive Toxicology, Animal Replacement Strategies and Human Biomonitoring.
He is an observer on several International Advisory Boards.
As a Patient Advocate of Inspire2Live I connect patients, researchers and clinicians to further research, treatments and care; in the Netherlands as well as international. I organize congresses, lobby the matrix of public authorities, health care organizations, insurance companies and health research institutes. I also give lectures and talks to help patients and society to fight cancer where possible and live with cancer with a good quality of life. I’m a writer of blogs, articles and books that also contributes to these topics. I'm able to show people their shining and radiant possibilities in every possible situation and let them exploit their talent in favour of others. I create Awareness and Hope where hope comes through vision.
I have been the co-founder of Alpe d’HuZes, the foundation that is most famous for the annual cycling event on Mount Alpe d’Huez. We raised over 125 million euro for the fight against cancer. I work at the Central Bank of the Netherlands as a program manager and advisor for complex and politically difficult problems. My employer facilitates me in this job. I was honoured with a doctorate in October 2012 at the Free University in Amsterdam.
Personalized Medicine: The hope for patients in another approach
Inspire2Live is convinced that we can get cancer under control by the cooperation of patients, researchers and clinicians and with the combination of emotions and arguments. Emotions because it are we patients that are dying and need the better treatments. Arguments because we can only cooperate when we patient advocates know everything about the way the researchers and clinicians work and are an equal partner in this fight. If about us, not without us.
We know how to do the things that will benefit the patient, we want to do these things and we can do it. So what is preventing us from doing it? Yes there are barriers like data, law & regulation, money, privacy and of course the publication culture that determines the reward structure; publish or perish. But there is more.
The way the Medical Industrial Complex works has great similarities with the Financial and Military industrial complexes. The way the academic world works together with government and industry does not necessarily benefit the patient and her loved ones as does it not in the Military and Financial Industrial Complex where the citizen and owner of saving accounts also see that their interest is not always served in a proper way.
I stopped believing that there is bad intention in all this. There is not. It is my conviction that in the past decennia we’ve lost the possibility of having good discussions about good and bad. We don not challenge each other any more. When we have good discussions then the outcome determines the rules and regulations that we want to follow. It should be the Morality that defines the Law, but it is now the Law that defines Morality. The cause of this is the stopping of thinking: ‘The sad truth about evil is that it is been done by people who never make their minds up about good and bad’ (Hannah Arendt). This is why a doctor is honest and thinks she’s doing the right thing when she tells a dying patient that she can’t give this drug because she does not know what the long term effects of this drug are. The patient would have been very happy with long term effects after 5 years ...
Now, we can bring back the right order of Morality and Law by 4 rules:
- Put different people in a room.
- Go for the root cause.
- Scale up fast.
- Be independent.
By doing this in the cooperation between patients, researchers and clinicians and use the emotions and arguments to define the Why, What and How, we are able to get cancer under control and inspire people to lead Happy and Healthy lives in Harmony with cancer.
And the beauty is that it works for the other complexes as well!
Chairs: Anna Norrby-Teglund & Damjana Rozman
Talks on European collaborative initiatives and projects
Open Multiscale Systems Medicine (OpenMultiMed) – Prof Harald Schmidt, Maastricht University, The Netherlands.
Personalizing health care in Multiple Sclerosis using systems medicine tools (Sys4MS) – Dr Pablo Villoslada, MD, IDIBAPS, Hospital Clinic of Barcelona, Spain.
Systems medicine approach to minimize macrophage-associated interstitial fibrosis and tubular atrophy in renal allograft rejection (SYSMIFTA) – Dr Friedrich Feuerhake, MD, Hanover Medical School, Germany
Horizon 2020 Marie Curie Action
Melanoma Cancer Systems Medicine (MEL-PLEX) – Prof Markus Rehm, University of Stuttgart, Germany
FP7, IMI and industry-funded project
Omics-based precision medicine (PRECISESADS) – Dr Guillermo Barturen Briñas, PhD, Pfizer-University of Granada-Junta de Andalucía Centre for Genomics and Oncological Research (GENYO), Spain
Systems biology of pathways involving brain ageing (AgedBrainSYSBIO) – Prof Michel Simonneau, Paris-Saclay University, France
Talks on educational projects
Systems Biology online course
also for medical doctors
Prof Dr Gerold Baier, University College London, UK
MD/PhD in Systems Medicine
Georgetown doctoral school
Dr Elliot Crooke, Georgetown University Medical Center, Washington DC, USA
The buffet will take place in the Casino and Gallery on ground floor level of the Kaiserin Friedrich Haus. Wine, beer and a buffet dinner will be served.
go to: Thursday, 27th Oct.